Support and Patient Groups

Erythropoietic protoporphyria patients are represented nationally and internationally by a number of support groups. You can learn more by following the links below.

International

International Porphyria Patients Network

Eurordis RareConnect – Porphyria Community (online)

Europe

Belgian EPP Association

British Porphyria Association

Finnish Porphyria Support Group

French Porphyria Association

German EPP Association

Netherlands EPP Association

Norwegian Porphyria Association (NPF)

Porphyria Association Denmark

Spanish Porphyria Foundation

Swiss Porphyria Association

Swedish Porphyria Association

Asia-Pacific

Porphyria Australia

SAKURA Friends (Japan)

Americas

American Porphyria Foundation (USA)

Canadian Association for Porphyria

Africa

Porphyria South Africa